In addition to ensuring communities around the country have an adequate blood supply for new moms, we are passionate about supporting survivors and families affected by severe maternal morbidity. Most survivors have significant informational and emotional needs following discharge. Finding a space to process and connect with other survivors is a healing recovery experience for many. While not an exhaustive list of organizations, this list of resources will help you get started.
Placenta Accreta Spectrum
Amniotic Fluid Embolism
Blood Clots
- Blood Clot Recovery Network
- March of Dimes – Blood Clots, DVT, PE
- National Blood Clot Alliance
- The Shane Foundation
- Women and Blood Clots
Heart Failure (pregnancy induced)
Grief and Loss
- AFE Foundation: Guide For Grieving Families
- The Compassionate Friend
- Grief Healing: For Widows, Widowers and Single Parents
- Jace’s Journey
- Liz Logelin Foundation
- March of Dimes – Grief & Loss
- March of Dimes – Stillbirth
- National Share (Pregnancy & Infant Loss Support)
- Soaring Spirits (loss of partner)
- What’s Your Grief: Widowed Dads A Resource Round-up
- What’s Your Grief: Parenting While Grieving
Online Peer Led Support Groups
- Birth Trauma Support
- Hysterectomy Due to Childbirth
- Maternal Near-Miss Survivors
- One and Done Not By Choice
- Placenta Accreta Support
- Postpartum Hemorrhage and Hysterectomy
- Postpartum Hemorrhage Survivors
- Preeclampsia, Eclampsia & HELLP Syndrome Survivors
- Surviving a Silent Killer, Let’s Talk Babies (PE/DVT)
Postpartum Hemorrhage
Postpartum Mental Health
- The Bloom Foundation
- Cherished Mom
- March of Dimes – Postpartum Mental Health
- Postpartum Support International
- Postpartum PTSD
Preeclampsia/Eclampsia/ HELLP Syndrome
Sepsis
Sheehan’s Syndrome
Trauma
- After the ICU
- After Trauma
- Medically Induced Trauma Support Services
- Prevention and treatment of traumatic childbirth (PATTCh)
- Put A Face On Maternal Health
- Solace for Mothers
- Trauma and Sleep
- Unexpected Project
- We are Mother Good
Resources for Fathers
- AFE Foundation: Guide For Grieving Families
- Boot Camp For Dads
- Grief Healing: For Widows, Widowers and Single Parents
- The Liz Logelin Foundation
- Postpartum Dads
- Postpartum Men
- Postpartum Support International – Dads
- Soaring Spirits (loss of partner)
- What’s Your Grief: Widowed Dads A Resource Round-up
- What’s Your Grief: Parenting While Grieving Parent Support
New Parent Support (with a chapter on Near-Miss Survivorship)
Advocacy & Awareness
- Alliance for Innovation on Maternal Health
- Black Mamas Matter Alliance
- California Maternal Quality Care Collaborative
- Cesarean Rates
- Every Mother Counts
- Faces of Postpartum
- Heroes for Moms
- Improving Birth
- International Cesarean Awareness Network (ICAN)
- March of Dimes
- March for Moms
- Melinated Moms
- Merck for Mothers
- MoMMAs Voices
- Moms Rising
- National Perinatal Association
- Institute for Perinatal Quality Improvement
- The Tara Hansen Foundation
- The White Ribbon Alliance
- 2020 Mom
- 4 Kira 4 Moms
If you know of any groups or organizations that should be added, please email casey@heroesformoms.com.
Heroes for Moms 